Our eldest daughter, Megan, was diagnosed with Type 1 in 2006 at the age of 16. For the next ten years we were completely unaware that she was in the grip of T1DE/Diabulimia, something we had never even heard of. We learned of the condition in 2016 following Megan’s first suicide attempt, and spent a year witnessing the inadequacies of the system that was supposed to help her until she took her own life in 2017.
Since then we have tried to raise awareness of T1DE/Diabulimia as a specific and unique condition that requires official recognition, and a structured treatment pathway. We have no medical training but have asked a lot of questions and done as much research as we can.
As we are now both retired we do have a certain amount of independence and plenty of time and determination .